BOSTON — My wife, Ginnie, and I want to share some great news with you about one of our grandchildren. As some of you know, our little trouper Hadley, who just turned eight, has Tuberous Sclerosis, a rare genetic disorder for which there is no known cure. That, of course, is not the good news. The good news? The doctors at Boston Children’s Hospital and the recent tests that show she is stable with no changes!
Hadley, who I always say is tougher than most of the adults I know, recently had to have a brain MRI and a separate MRI of her abdomen. (That’s more than three hours of staying still–no sedation !–while the machines do their work.) I don’t think I could do that.
The results are all good, she is stable with no changes! We are so proud of her and elated with the good news.
So many people have asked how they can help and now I have the perfect answer. My son in law K.C. Carpenter is running the Boston Marathon for the second year in a row to support Children’s Hospital, the place that takes such amazing care of Hadley and so many other children in need. Check out his page at this link and help him reach his goal. Thanks to all for the love. (All money raised goes directly to Children’s Hospital.) — Bill
MY GRANDDAUGHTER HADLEY
